Slowly recovering...

Angel is slowly recovering from this busy week. He has had quite a bit of pain these last few days since surgery. He also has struggled with anxiety as his whole world has been turned up side down for sometime now. Getting discharged 2 weeks ago was wonderful and much needed but Angel now is having a harder time adjusting to the hospital routine. He is requiring more with boundaries and structure than he had before. We have made a point of setting a daily schedule and routine. He bucks at the idea of specific task like bathing, dressing changes and walks but has realized that once these things are done he is able to enjoy the rest of the day. He is a brave little boy having to go through this major transplant and follow up operations. He has done soo well over-all and we are very proud of him. The plan will be for him to be admitted until he is back to tolerating his feeds to at least where he was before surgery if not a little better. Our hope is to be home before Thanksgiving and especially before Angel's birthday in December.
We will continue to encourage progress with Angel post operatively and look forward to the day that he will be running and playing outside again.

The rest of the family is doing well, we are soo grateful for our parents who have been there supporting us and working directly with us on almost every one of the 81 days we have been out here. Such a beautiful thing to have such a wonderful family. To be able to rely on them has given us the ability to stay strong and on course for this amazing mission of getting Angel his transplant and a renewed hope for his future.

Thanks again everyone for reading and supporting us during this time. It is a pleasure to share with all of you our daily lives and to know that you are praying for our family and especially Angel is beyond words...THANK YOU!