It has been wonderful to have the family all under one roof. What a joy it is to work together as a team side by side not separated by a hospital admission. But WOW... it is soo busy. Angel has had some close calls that got us close to being readmitted to the hospital. Just after 6 hours home we were calling back to the doctors to report issues. We have been in close contact with medical staff daily. Everyday we go into the hospital for labs to be drawn and to be seen by the doctors. Angel has had problems with his ostomy since last week. This has now brought us to a point that he will require a "take-down" surgery to remove the ostomy and reconnect his bowel. This will be months sooner than previously planned. The repercussions are unknown as this is uncharted territory for a postop bowel transplant and usually reserved for a patient 6 months after transplant that is doing stellar with tolerating feeds. Angel has struggled with feeds and with staying hydrated but will require this surgery due to the prolapsed bowel from the stoma. We have now scheduled Angel for a CT, barium enema and upper and lower scopes of the intestine next week. If all looks good we will do the take down at the end of Oct. This then means that we will need to stay around the hospital for another 6 weeks if not longer. Our hope is that we are able to come home before Thanksgiving.
Angel is continuing to hang in there I ask that you pray for him as we are still in the trenches of this major battle of being at home post discharge. He also will be required to have multiple procedures and another surgery in the next few weeks. Which will also mean that he will need to be in the hospital for another admission. We as a family could also use your prayers and support. These busy days since discharge followed by a 70 day hospital admission have started to take there toll. We are hanging in there but it has been exhausting. One huge continued praise is the support of our parents. My Mom has stayed with us and has supported us during this transition. What an amazing blessing to have a supportive family during times like this.
Well it's time to get some sleep as we have to be up early to go to the hospital for labs. I will update more later. But as a general rule if I am not keeping up with the blog it's because I am barley keeping up with everything else. =)
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Speaking as one who has been there (with my husband during cancer treatment), the placement of an ostomy can often cause the dehydration. I pray the take-down will go well and his body will respond positively! I also pray that during all the "medical stuff" you are going through you are able to enjoy a little bit of just being a family! You seem like such wonderful, loving people. I hope you are able to draw on your strength from God to get through all this and enjoy the wonderful family that you are!
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