Angel was discharged on Friday! This has been a very anticipated discharge as over 90 days have passed since his transplant. It is very nice to see Angel out of the hospital and playing. Though he isn't fully recovered from everything, as the healing is going to take a few more months. But his spirits are up and he is ready to get back to his old ways. He asked when we go home if he will be able to play on his playground and run around in the yard. He is ready but his body will need a few more months to catch up with this ambitious little boy.
It has been a little rocky integrating Angel's routine of TPN, feeds, meds, and wound care into the apartment life but each day it is getting better and I should have it hopefully figured out in a few more days! =)
But really the best part is being all together... Over the last 90 days we as a family only had 9 days together and I was able to stay with Sarah and the kids only about 10 more nights above that. So over 70 days separated by different living quarters, and now we are all together...and it really is wonderful!
The boys have adapted and are playing together. Today Angel and I had to go back to the hospital and have labs drawn. But we finished the afternoon making up for it and going to Angel's favorite comic book store. The boys dressed up as Batman and Robin and had a wonderful time playing.
This week we hope to get things situated and maybe by next week Angel will be close to getting off TPN. This will be huge as Angel has not ever had time off TPN (IV nutrition). Off TPN we should be able to go back home. Everyday we are working for that goal and praying that we are wise with how aggressive to push formula feeds and how aggressive in slowing down the TPN.
Angel and our family are soo grateful for the continued support of our friends and family. We would like to extend a special THANK YOU to our church who has sent us a a get well DVD, it was very special...Thank you!
Well it's late and time to get some rest. Hope this post was clear enough... as I am very tired. But thank you all for keeping up with us, we are honored to have friends and family like you...
Monday, October 27, 2008
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1 comment:
yeah! glad you are all back together and hopefully soon you'll be all together at your own home!!...still praying for you all, lona
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