Things with Angel are continuing... the roller coaster of events has not slowed down being here at home. The goal was to be off IV nutrition by the end of December and be completely dependent on formula feeds. But over the last few weeks Angel has had some set backs, he has had 2 bouts of an intestinal infection. Each time it presented Angel had major symptoms of nausea, vomiting and abdominal distention. These issues pose problems on many levels, as infection can lead down the road to rejection. The medical staff has been aggressive in investigating the cause of the symptoms and each time we have been relieved to have a positive results on the infection. But the gauntlet of test has been taxing as well as Angel having to endure the symptoms of the infection until it is under control. Angel has had multiple visits to the doctor and multiple testing but we have been able to manage everything from home. Even having his last infection which was right over Christmas. The medical staff was gracious in allowing us as a family to be together and I was able to manage a difficult situation at home. This made our home even more of a hospital but keeping us together was so special. Our circumstances didn't allow for a big family Christmas as we just stayed home together. But again being together has been what our family unit has needed.
These last six months has been soo incredible. The toll our family has taken has been intense. There has been big changes and subtle changes but all in all we have had to adapt. Angel currently is doing pretty well though we are still having some issues with nausea, vomiting and abdominal distension. His last infection is being treated currently for another week and we will go to the hospital on Friday to see the medical staff and follow up on everything. December was an extremely busy month and January has not been much quieter.
Our hope is that we adapt and adjust but get to a point that settles and allows for some normalcy. Angel has been out of school since last year and we have not been able to get any therapies for him since being discharged from the hospital. We are hopeful that with some stability we will begin to build a routine and start home hospital education and therapies. Angel's immune system is still very compromise and the medical staff has ordered for us to keep Angel out of the general public as it pertains to education and other major events.
We as a family are hopeful that 2009 will be more calm than 2008. As we had prayed for peace in 2008 and realized we received what we asked for .... but more of a peace that passes all understanding is more of what we received. Looking ahead has been challenging, it is difficult to see past the current week but we are confident that the Lord will continue to be faithful. We will be on our knees this year more than ever as we are by faith moving ahead one day at a time.
Thank you all for your support. I will continue to update this blog and when things get quiet and when there is no update pray for us that things are really good and not the other way around... we are looking forward to having less valleys ahead and enjoying more peak-like experiences.
Happy New Year to all!
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Sorry to hear there have been setbacks.... I will continue sending prayers out for Angel. I hope he turns a corner very soon and 2009 is amazing to him and your family!
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