Home Sunday?

We are cautiously preparing to go HOME on Sunday!!! After our last disappointment we want to be cautiously hopeful as a lot can happen in 24 hours! But the boys are getting excited and we feel like this actually may happen this time. We will spend tomorrow packing up and cleaning the apartment and hopefully arrive home at 1pm on Sunday afternoon as we had planned before. Once again, we welcome you to be there to cheer Angel home! The same plan goes where we will maybe sing a few songs and then head back to reveal Angel's Make A Wish to him. We will ask that no one really come in the house to keep Angel's exposure to a minimum (he will also wear a mask while outside with everyone). We'll be organizing playdates on an individual basis as his health (and others) allows. Oh how we look forward to that! It will be a short little welcome so we completely understand if some don't make it.

At clinic today Angel weighed 60lbs!!! He has gained 10lbs in a little over a month! This is the child who has taken 5 YEARS to gain his last 10lbs! They are going to cut down on his TPN and increase his J-tube feeds 5cc/hr to 60cc/hr for 22 hours a day. It is a joy to see him "bulk up". His cheeks are puffy from the Prednisone/steroids for antirejection, not weight gain... but his "slim" jeans are just a little TOO tight. ;)

Thank you for following us, supporting us, and praying for us on this journey that is far from over. We'll continue to update intermittently here even when we are home. There will undoubtably be ups and downs.