Keeping things going...

Over the last few days Angel has progressively improved. His intestinal blockage has appeared to have resolved. No further test for the fluid collection has been done as the theory of a hematoma was given and therefore it should resolve naturally in time. So far it appears that they were right and everyday Angel is improving. The team has begun to start formula feeds again and Angel has tolerated the daily increases in overall volume. We are at 20ml/hr with the goal of 65ml/hr in order to go home. He is still receiving TPN and it is being weaned off daily as preserving the new liver from any excessive damage is very important. Our new goal at this point is to get discharged by the end of next week it will be around 70 days at that point. From what we understand, 80 days is an average stay post liver, bowel and pancreas transplant. When we had tried to go home at the 45 day mark a week or so ago it was very early and the team was very impressed we were looking to go home. But as things went we have made progress more in the average range. But progression is the key and at this rate we will be home soon.
It has been such an incredible time for our family. We have experienced such an incredible range of emotions and experiences. Little Haven has grown soo much in these last 5 weeks. She has been definatly more colicky than we had anticipated. This has been very difficult for Sarah as well as our family. Little Haven came into this world with some impressive lungs and clear voice and she continues to express herself daily. Sarah is fine tuning her feeding and sleeping schedule and things appear to be more manageable. Once we are together as a family we will be able to help each other more. I am only going home a couple hours a day and sleeping over night with them once a week. We are very blessed to have our parents who continue to alternate every few days staying to help us maintain some normalcy during this time.
Our middle son Hudson is growing up before my eyes. He seemed to really mature this summer. From toddler to little boy, his interests are bugs, snakes and dinosaurs. He also loves video games and it is soo impressive to watch him pick up a controller and navigate a game as if he has played it before. Also puzzles he has discovered and just like video games he opens up the puzzle and puts it together with focus and confidence like he has done it before. He is a good boy and I think this experience really has been the hardest for him. Such a life change with brother in the hospital, moving to a new place, Dad not home very much and now fussy little sister. But he continues to smile and play and is coping well considering everything.
I will continue to update about every other day. Angel’s new intestine will be put to the test this week with the hope to make it to the apartment in 10-14 days and head back to home at the end of October.
Thank you all for your interest in our family for your love and support from all over. We appreciate all your prayers and will continue to be confident in our God who is bigger than all of these things and who has carried us during these last 55 days.