Angel's surgery went well today. They were not able to close him all the way as they had hoped because his new bowel/intestines were too dilated. However, they were able to close about 65% of his abdomen. He is in a significant amount of pain and crying a lot. However, the pain medication is working and he is sleeping beside me right now. The doctors will go back into surgery in another week and try to close him all the way. There is a possibility that they will need to use some synthetic fiber that grows like skin if they cannot close his own skin all the way.
Another tidbit of news in our lives today is that the c-section of our baby, Haven, has been moved to August 13th at 11am. Angel may only be a few days post-op from his second closure surgery, but we will deal with that timing as it comes.
We are moving in to our apartment tonight as well. We are all looking forward to being close to each other and developing a routine.
Please pray for Angel's pain tonight...
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- Angel's Wings
- Nick and Sarah brought Angel home at age 3 as a very medically fragile child. They gave him 2 years prognosis. He was born weighing 1lb 7oz and they took out most of his small intestines. Because of this, he has been dependent on IV nutrition (called TPN) since birth. There are two things that have threatened his life in the last 5 years: 1) A line infection resulting in sepsis in the Central Line placed in his heart to infuse the TPN and 2) Liver failure as a result of the liver doing the job never intended of assimilating all the nutrients from the blood stream. After 5 wonderful years of doing better than anyone imagine and having a "normal" life his liver began to decline steadily. He was placed on a liver, bowel, and pancreas transplant list. He was listed 7/7/08 and received organs on 7/20/08. This type of transplant is very precarious and has the lowest success rate of most transplants. But Angel is a superhero and already doing better than anyone expected or has seen in most cases. Thank you for sharing in their journey.
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